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CureMFM13: How a Rare Disease Diagnosis Built a Community
Todd fought for years to get a diagnosis. Now, alongside his team at Cure MFM13, he’s working to build a community, advance research, and work towards a world free from MFM 13.
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BPAN.
CRPS.
Congenital Adrenal Hyperplasia. Darier’s Disease. Ehlers-Danlos Syndrome. Familial Adenomatous Polyposis. FCAS. Guillain-Barre Syndrome. HADDS. Hemophilia. Huntington’s Disease. Keratoconus. Limb-Girdle Muscular Dystrophy. MELAS. Myofibrillar Myopathy type 13. MSMDS. Niemann-Pick Disease Type C. Ornithine Transcarbamylase Deficiency. Osteosarcoma. Ovarian Cancer. PDCD. PPA2 Deficiency. Prader-Willi Syndrome. PNES. Short Bowel Syndrome. Stiff Person Syndrome. Thygeson’s Disease. XLID98.
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