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Jessica Lynn

  • “Don’t Wait”: One Musician’s Advice as He Navigates Thyroid Eye Disease For the Second Time
    February 25, 2026

    “Don’t Wait”: One Musician’s Advice as He Navigates Thyroid Eye Disease For the Second Time

    Jessica Lynn
  • This Mother-Son Duo Helped Change the Treatment Landscape for Classic Congenital Adrenal Hyperplasia
    February 13, 2026

    This Mother-Son Duo Helped Change the Treatment Landscape for Classic Congenital Adrenal Hyperplasia

    Jessica Lynn
  • My Laryngeal Cancer Journey – Ginger Ortiz
    February 10, 2026

    My Laryngeal Cancer Journey – Ginger Ortiz

    Jessica Lynn
  • ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others
    February 3, 2026

    ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others

    Jessica Lynn
  • TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss
    January 28, 2026

    TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss

    Jessica Lynn
  • BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families
    January 27, 2026

    BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families

    Jessica Lynn
  • Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026
    January 23, 2026

    Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026

    Jessica Lynn
  • The Zebra & The Bear: How One Mother’s Tireless Efforts to Save Her Daughter from MSD Helped Advance Gene Therapy
    December 19, 2025

    The Zebra & The Bear: How One Mother’s Tireless Efforts to Save Her Daughter from MSD Helped Advance Gene Therapy

    Jessica Lynn
  • OS Therapies’ Paul Romness Discusses Next-Gen Treatment Advances for Osteosarcoma
    December 4, 2025

    OS Therapies’ Paul Romness Discusses Next-Gen Treatment Advances for Osteosarcoma

    Jessica Lynn
  • CureMFM13: How a Rare Disease Diagnosis Built a Community
    November 20, 2025

    CureMFM13: How a Rare Disease Diagnosis Built a Community

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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