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rare disease

  • Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers
    August 18, 2025

    Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers

    Jessica Lynn
  • How AI is Helping Detect Rare Eye Diseases
    May 15, 2025

    How AI is Helping Detect Rare Eye Diseases

    Jessica Lynn
  • A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.
    January 29, 2025

    A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.

    Jessica Lynn

Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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