health

January 27, 2026

BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families

Jessica Lynn
November 20, 2025

CureMFM13: How a Rare Disease Diagnosis Built a Community

Jessica Lynn
October 28, 2025

After Two Decades, Information on Thygeson’s Disease Remains Slim: Here’s Why Emma is Sharing Her Story

Jessica Lynn
October 6, 2025

Fighting for Her Voice: A Rare Disease Patient Looks to the Future

Jessica Lynn
September 9, 2025

Fighting for FCAS Awareness: How One Military Family Navigates Rare Disease Care and Stigma After Cross-Country Move

Jessica Lynn
August 18, 2025

Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers

Jessica Lynn
August 6, 2025

The New Reality of Rare Disease Treatment: How an FDA-Approved Medicine for NPC Helped Change Connor’s Life

Jessica Lynn
June 16, 2025

Heart of PPA2: Kathleen is Raising PPA2 Awareness to Support Her Son Noah

Jessica Lynn
April 9, 2025

The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome

Jessica Lynn
March 14, 2025

The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome

Jessica Lynn