• Instagram
  • X
Rareatives

Rareatives

    • About
    • Blog
    • Contact
    • Resources

health

  • CureMFM13: How a Rare Disease Diagnosis Built a Community
    November 20, 2025

    CureMFM13: How a Rare Disease Diagnosis Built a Community

    Jessica Lynn
  • After Two Decades, Information on Thygeson’s Disease Remains Slim: Here’s Why Emma is Sharing Her Story
    October 28, 2025

    After Two Decades, Information on Thygeson’s Disease Remains Slim: Here’s Why Emma is Sharing Her Story

    Jessica Lynn
  • Fighting for Her Voice: A Rare Disease Patient Looks to the Future
    October 6, 2025

    Fighting for Her Voice: A Rare Disease Patient Looks to the Future

    Jessica Lynn
  • Fighting for FCAS Awareness: How One Military Family Navigates Rare Disease Care and Stigma After Cross-Country Move
    September 9, 2025

    Fighting for FCAS Awareness: How One Military Family Navigates Rare Disease Care and Stigma After Cross-Country Move

    Jessica Lynn
  • Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers
    August 18, 2025

    Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers

    Jessica Lynn
  • The New Reality of Rare Disease Treatment: How an FDA-Approved Medicine for NPC Helped Change Connor’s Life
    August 6, 2025

    The New Reality of Rare Disease Treatment: How an FDA-Approved Medicine for NPC Helped Change Connor’s Life

    Jessica Lynn
  • Heart of PPA2: Kathleen is Raising PPA2 Awareness to Support Her Son Noah
    June 16, 2025

    Heart of PPA2: Kathleen is Raising PPA2 Awareness to Support Her Son Noah

    Jessica Lynn
  • The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome
    April 9, 2025

    The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome

    Jessica Lynn
  • The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome
    March 14, 2025

    The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome

    Jessica Lynn

Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

Subscribe and get the latest news to your mailbox.

  • Instagram
  • Twitter
    • About
    • Blog
    • Contact
    • Resources
  • Subscribe Subscribed
    • Rareatives
    • Already have a WordPress.com account? Log in now.
    • Rareatives
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar