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  • TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss
    January 28, 2026

    TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss

    Jessica Lynn
  • Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026
    January 23, 2026

    Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026

    Jessica Lynn
  • OS Therapies’ Paul Romness Discusses Next-Gen Treatment Advances for Osteosarcoma
    December 4, 2025

    OS Therapies’ Paul Romness Discusses Next-Gen Treatment Advances for Osteosarcoma

    Jessica Lynn
  • CureMFM13: How a Rare Disease Diagnosis Built a Community
    November 20, 2025

    CureMFM13: How a Rare Disease Diagnosis Built a Community

    Jessica Lynn
  • It Took Ten Years to Receive Her Daughter’s MSMDS Diagnosis: Here’s Why This Mom is Speaking Up
    November 14, 2025

    It Took Ten Years to Receive Her Daughter’s MSMDS Diagnosis: Here’s Why This Mom is Speaking Up

    Jessica Lynn
  • Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment
    November 3, 2025

    Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment

    Jessica Lynn
  • Fighting for Her Voice: A Rare Disease Patient Looks to the Future
    October 6, 2025

    Fighting for Her Voice: A Rare Disease Patient Looks to the Future

    Jessica Lynn
  • Decoding Darier’s: How a Teacher Created a Network for Darier’s Disease
    September 11, 2025

    Decoding Darier’s: How a Teacher Created a Network for Darier’s Disease

    Jessica Lynn
  • Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers
    August 18, 2025

    Golin Health’s “Raising Rare Report” Bridges the Communication Gap Between Young Adults and Their Caregivers

    Jessica Lynn
  • The New Reality of Rare Disease Treatment: How an FDA-Approved Medicine for NPC Helped Change Connor’s Life
    August 6, 2025

    The New Reality of Rare Disease Treatment: How an FDA-Approved Medicine for NPC Helped Change Connor’s Life

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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