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  • How One Family is Navigating Life with XLID98, A Genetic Condition with Only 298 Known Cases
    June 28, 2025

    How One Family is Navigating Life with XLID98, A Genetic Condition with Only 298 Known Cases

    Jessica Lynn
  • How AI is Helping Detect Rare Eye Diseases
    May 15, 2025

    How AI is Helping Detect Rare Eye Diseases

    Jessica Lynn
  • The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome
    April 9, 2025

    The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome

    Jessica Lynn
  • Doctors Don’t Always Believe Her Disorder Exists: How the Medical System Could Better Understand and Serve Individuals with Trauma
    February 13, 2025

    Doctors Don’t Always Believe Her Disorder Exists: How the Medical System Could Better Understand and Serve Individuals with Trauma

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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