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patient stories

  • His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits
    March 20, 2025

    His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits

    Jessica Lynn
  • The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome
    March 14, 2025

    The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome

    Jessica Lynn
  • Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness
    March 6, 2025

    Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness

    Jessica Lynn
  • Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights
    January 16, 2025

    Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights

    Jessica Lynn
  • Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2
    January 2, 2025

    Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2

    Jessica Lynn
  • When Doctors Stop Listening: The Challenges of Living with Multiple Rare Conditions
    December 2, 2024

    When Doctors Stop Listening: The Challenges of Living with Multiple Rare Conditions

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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