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rare diseases

  • Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS
    April 29, 2026

    Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS

    Jessica Lynn
  • “Not Defined By His Disability:” What Bennett Has Taught His Family About Spinal Muscular Atrophy
    April 7, 2026

    “Not Defined By His Disability:” What Bennett Has Taught His Family About Spinal Muscular Atrophy

    Jessica Lynn
  • SURVEY: The Rare Disease Diagnostic Odyssey
    March 23, 2026

    SURVEY: The Rare Disease Diagnostic Odyssey

    Jessica Lynn
  • ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others
    February 3, 2026

    ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others

    Jessica Lynn
  • Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026
    January 23, 2026

    Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026

    Jessica Lynn
  • Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment
    November 3, 2025

    Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment

    Jessica Lynn
  • Life’s a Polyp: Jenny’s Journey from FAP Patient to Advocate
    October 1, 2025

    Life’s a Polyp: Jenny’s Journey from FAP Patient to Advocate

    Jessica Lynn
  • Fighting for FCAS Awareness: How One Military Family Navigates Rare Disease Care and Stigma After Cross-Country Move
    September 9, 2025

    Fighting for FCAS Awareness: How One Military Family Navigates Rare Disease Care and Stigma After Cross-Country Move

    Jessica Lynn
  • Don’t Punish Pain: A Rare Disease Warrior’s Fight for Pain Management and Policy Change
    June 10, 2025

    Don’t Punish Pain: A Rare Disease Warrior’s Fight for Pain Management and Policy Change

    Jessica Lynn
  • “Think Rare and Act Fast”: A South Dakota Family’s Mission After Losing Their Son Pruitt to OTC Deficiency
    April 28, 2025

    “Think Rare and Act Fast”: A South Dakota Family’s Mission After Losing Their Son Pruitt to OTC Deficiency

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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