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Rareatives

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Jessica Lynn

  • An SOS for SPS
    May 22, 2025

    An SOS for SPS

    Jessica Lynn
  • How AI is Helping Detect Rare Eye Diseases
    May 15, 2025

    How AI is Helping Detect Rare Eye Diseases

    Jessica Lynn
  • A Swimmer’s Journey with CAH — and A New Treatment Option That Changes Everything
    May 1, 2025

    A Swimmer’s Journey with CAH — and A New Treatment Option That Changes Everything

    Jessica Lynn
  • “Think Rare and Act Fast”: A South Dakota Family’s Mission After Losing Their Son Pruitt to OTC Deficiency
    April 28, 2025

    “Think Rare and Act Fast”: A South Dakota Family’s Mission After Losing Their Son Pruitt to OTC Deficiency

    Jessica Lynn
  • The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome
    April 9, 2025

    The Voice She Couldn’t Find: A Speech Pathologist’s Journey Facing a Rare Variant of Guillain-Barré Syndrome

    Jessica Lynn
  • “Exactly Who She’s Meant to Be”: One Mom is Flipping the Script on How People Think About Prader-Willi Syndrome
    March 24, 2025

    “Exactly Who She’s Meant to Be”: One Mom is Flipping the Script on How People Think About Prader-Willi Syndrome

    Jessica Lynn
  • His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits
    March 20, 2025

    His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits

    Jessica Lynn
  • Hello, Adversity: How One Writer Used His LGMD2B Diagnosis to Reinforce His – and Others’ – Resilience
    March 18, 2025

    Hello, Adversity: How One Writer Used His LGMD2B Diagnosis to Reinforce His – and Others’ – Resilience

    Jessica Lynn
  • The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome
    March 14, 2025

    The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome

    Jessica Lynn
  • Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness
    March 6, 2025

    Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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