Skip to content
  • Instagram
  • X
Rareatives

Rareatives

    • About
    • Blog
    • Contact
    • Resources
    • World Orphan Drug Congress

rare disease

  • My Immune System Attacks My Liver — and Nobody Knows Why: Katherine’s Autoimmune Hepatitis Story
    March 20, 2026

    My Immune System Attacks My Liver — and Nobody Knows Why: Katherine’s Autoimmune Hepatitis Story

    Jessica Lynn
  • “Spinal Muscular Atrophy Is Not Our Whole Story”: How One Family Navigated Two SMA Diagnoses and Found Hope
    March 18, 2026

    “Spinal Muscular Atrophy Is Not Our Whole Story”: How One Family Navigated Two SMA Diagnoses and Found Hope

    Jessica Lynn
  • Life’s a Polyp Foundation Celebrates Grand Launch for Colorectal Cancer Awareness Month
    March 9, 2026

    Life’s a Polyp Foundation Celebrates Grand Launch for Colorectal Cancer Awareness Month

    Jessica Lynn
  • What It’s Like to Raise a Daughter with Maple Syrup Urine Disease in the Philippines
    February 26, 2026

    What It’s Like to Raise a Daughter with Maple Syrup Urine Disease in the Philippines

    Jessica Lynn
  • “Don’t Wait”: One Musician’s Advice as He Navigates Thyroid Eye Disease For the Second Time
    February 25, 2026

    “Don’t Wait”: One Musician’s Advice as He Navigates Thyroid Eye Disease For the Second Time

    Jessica Lynn
  • This Mother-Son Duo Helped Change the Treatment Landscape for Classic Congenital Adrenal Hyperplasia
    February 13, 2026

    This Mother-Son Duo Helped Change the Treatment Landscape for Classic Congenital Adrenal Hyperplasia

    Jessica Lynn
  • ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others
    February 3, 2026

    ​​Always Forge Ahead with a Purpose: Navy Veteran Dan “Dry Dock” Shockley Turns a Rare Disease Diagnosis into a Mission to Educate Others

    Jessica Lynn
  • TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss
    January 28, 2026

    TAPS Support Foundation is Running a Cross-Sectional Survey on Hearing Loss

    Jessica Lynn
  • BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families
    January 27, 2026

    BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families

    Jessica Lynn
  • Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026
    January 23, 2026

    Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026

    Jessica Lynn
1 2 3 … 5
Next Page

Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

Subscribe and get the latest news to your mailbox.

  • Instagram
  • Twitter
    • About
    • Blog
    • Contact
    • Resources
    • World Orphan Drug Congress
  • Subscribe Subscribed
    • Rareatives
    • Already have a WordPress.com account? Log in now.
    • Rareatives
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar