Skip to content
  • Instagram
  • X
Rareatives

Rareatives

    • About
    • Blog
    • Contact
    • Resources

rare disease

  • BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families
    January 27, 2026

    BillionToOne’s Chelsea Wagner Shares How Precision Prenatal Diagnostics Could Change Outcomes for Rare Disease Families

    Jessica Lynn
  • Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026
    January 23, 2026

    Rareatives Announces Supporting Partnership with the World Orphan Drug Congress USA 2026

    Jessica Lynn
  • The Zebra & The Bear: How One Mother’s Tireless Efforts to Save Her Daughter from MSD Helped Advance Gene Therapy
    December 19, 2025

    The Zebra & The Bear: How One Mother’s Tireless Efforts to Save Her Daughter from MSD Helped Advance Gene Therapy

    Jessica Lynn
  • CureMFM13: How a Rare Disease Diagnosis Built a Community
    November 20, 2025

    CureMFM13: How a Rare Disease Diagnosis Built a Community

    Jessica Lynn
  • It Took Ten Years to Receive Her Daughter’s MSMDS Diagnosis: Here’s Why This Mom is Speaking Up
    November 14, 2025

    It Took Ten Years to Receive Her Daughter’s MSMDS Diagnosis: Here’s Why This Mom is Speaking Up

    Jessica Lynn
  • Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment
    November 3, 2025

    Fighting for Their Daughters: Two Mothers Stand Against the FDA After Complete Response Letter for Rare Disease Treatment

    Jessica Lynn
  • After Two Decades, Information on Thygeson’s Disease Remains Slim: Here’s Why Emma is Sharing Her Story
    October 28, 2025

    After Two Decades, Information on Thygeson’s Disease Remains Slim: Here’s Why Emma is Sharing Her Story

    Jessica Lynn
  • Fighting for Her Voice: A Rare Disease Patient Looks to the Future
    October 6, 2025

    Fighting for Her Voice: A Rare Disease Patient Looks to the Future

    Jessica Lynn
  • Life’s a Polyp: Jenny’s Journey from FAP Patient to Advocate
    October 1, 2025

    Life’s a Polyp: Jenny’s Journey from FAP Patient to Advocate

    Jessica Lynn
  • Decoding Darier’s: How a Teacher Created a Network for Darier’s Disease
    September 11, 2025

    Decoding Darier’s: How a Teacher Created a Network for Darier’s Disease

    Jessica Lynn
Previous Page
1 2 3 4 5 6
Next Page

Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

Subscribe and get the latest news to your mailbox.

  • Instagram
  • Twitter
    • About
    • Blog
    • Contact
    • Resources
Loading Comments...