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  • AI-Driven Patient Detection Surfaces Approximately 1,200 Likely-Undiagnosed GEP-NET Patients in UK Primary Care
    June 30, 2026

    AI-Driven Patient Detection Surfaces Approximately 1,200 Likely-Undiagnosed GEP-NET Patients in UK Primary Care

    Jessica Lynn
  • Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data
    June 8, 2026

    Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data

    Jessica Lynn
  • Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS
    April 29, 2026

    Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS

    Jessica Lynn
  • Multiple Conditions and a Mission to Stop the Stigma: Sammy’s Story
    April 7, 2026

    Multiple Conditions and a Mission to Stop the Stigma: Sammy’s Story

    Jessica Lynn
  • “Not Defined By His Disability:” What Bennett Has Taught His Family About Spinal Muscular Atrophy
    April 7, 2026

    “Not Defined By His Disability:” What Bennett Has Taught His Family About Spinal Muscular Atrophy

    Jessica Lynn
  • SURVEY: The Rare Disease Diagnostic Odyssey
    March 23, 2026

    SURVEY: The Rare Disease Diagnostic Odyssey

    Jessica Lynn
  • My Immune System Attacks My Liver — and Nobody Knows Why: Katherine’s Autoimmune Hepatitis Story
    March 20, 2026

    My Immune System Attacks My Liver — and Nobody Knows Why: Katherine’s Autoimmune Hepatitis Story

    Jessica Lynn
  • “Spinal Muscular Atrophy Is Not Our Whole Story”: How One Family Navigated Two SMA Diagnoses and Found Hope
    March 18, 2026

    “Spinal Muscular Atrophy Is Not Our Whole Story”: How One Family Navigated Two SMA Diagnoses and Found Hope

    Jessica Lynn
  • Life’s a Polyp Foundation Celebrates Grand Launch for Colorectal Cancer Awareness Month
    March 9, 2026

    Life’s a Polyp Foundation Celebrates Grand Launch for Colorectal Cancer Awareness Month

    Jessica Lynn
  • What It’s Like to Raise a Daughter with Maple Syrup Urine Disease in the Philippines
    February 26, 2026

    What It’s Like to Raise a Daughter with Maple Syrup Urine Disease in the Philippines

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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