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  • A New Chapter for Alexander Disease
    October 16, 2026

    A New Chapter for Alexander Disease

    Davi Jacobs
  • Never Knowing When: Life With Cerebral Cavernous Malformation, and the Patient-Driven Search for a Cure 
    October 14, 2026

    Never Knowing When: Life With Cerebral Cavernous Malformation, and the Patient-Driven Search for a Cure 

    Davi Jacobs
  • One Mom’s Fight to Change the Language Around Microvillus Inclusion Disease (MVID)
    September 27, 2026

    One Mom’s Fight to Change the Language Around Microvillus Inclusion Disease (MVID)

    Jessica Lynn
  • This Beautiful Liphe: How Marjorie and Ronan are Raising PKU Awareness
    September 23, 2026

    This Beautiful Liphe: How Marjorie and Ronan are Raising PKU Awareness

    Jessica Lynn
  • This Mother Has Fought for Three Years to Find Answers for Her Undiagnosed Son – Can You Help?
    September 8, 2026

    This Mother Has Fought for Three Years to Find Answers for Her Undiagnosed Son – Can You Help?

    Jessica Lynn
  • CAMP4 Therapeutics’ CMO Yuri Maricich Describes Push to Deliver the First SYNGAP1 Treatment
    August 24, 2026

    CAMP4 Therapeutics’ CMO Yuri Maricich Describes Push to Deliver the First SYNGAP1 Treatment

    Jessica Lynn
  • AI-Driven Patient Detection Surfaces Approximately 1,200 Likely-Undiagnosed GEP-NET Patients in UK Primary Care
    June 30, 2026

    AI-Driven Patient Detection Surfaces Approximately 1,200 Likely-Undiagnosed GEP-NET Patients in UK Primary Care

    Jessica Lynn
  • Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data
    June 8, 2026

    Machine Learning Maps and Discovers Clinical Endpoints in Pompe Disease Using Real-World Data

    Jessica Lynn
  • Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS
    April 29, 2026

    Tisento Therapeutics’ Chad Glasser Discusses PRIZM Trial, Zagociguat Development for MELAS

    Jessica Lynn
  • Multiple Conditions and a Mission to Stop the Stigma: Sammy’s Story
    April 7, 2026

    Multiple Conditions and a Mission to Stop the Stigma: Sammy’s Story

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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