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  • His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits
    March 20, 2025

    His Fight with Hemophilia Has Taught This Football Coach to Live a Life Without Limits

    Jessica Lynn
  • Hello, Adversity: How One Writer Used His LGMD2B Diagnosis to Reinforce His – and Others’ – Resilience
    March 18, 2025

    Hello, Adversity: How One Writer Used His LGMD2B Diagnosis to Reinforce His – and Others’ – Resilience

    Jessica Lynn
  • The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome
    March 14, 2025

    The Educational Burden of Rare Disease: Angela Faces Challenges in Having to Teach Providers About Stiff Person Syndrome

    Jessica Lynn
  • Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness
    March 6, 2025

    Malani’s Mission: One Family’s Commitment to Raising BPAN Awareness

    Jessica Lynn
  • The Axe Factor: Changing Awareness and Understanding Around Hemophilia A
    March 3, 2025

    The Axe Factor: Changing Awareness and Understanding Around Hemophilia A

    Jessica Lynn
  • Tisento Therapeutics’ Patient-Informed Phase 2 Trial is Advancing MELAS Research
    February 26, 2025

    Tisento Therapeutics’ Patient-Informed Phase 2 Trial is Advancing MELAS Research

    Jessica Lynn
  • A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.
    January 29, 2025

    A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.

    Jessica Lynn
  • PDUFA Date Extended for Potential Barth Syndrome Therapy Elamipretide
    January 27, 2025

    PDUFA Date Extended for Potential Barth Syndrome Therapy Elamipretide

    Jessica Lynn
  • Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights
    January 16, 2025

    Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights

    Jessica Lynn
  • Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2
    January 2, 2025

    Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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