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  • A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.
    January 29, 2025

    A Mental Health Crisis is Looming for Rare Disease Caregivers. Give an Hour is Here to Help.

    Jessica Lynn
  • PDUFA Date Extended for Potential Barth Syndrome Therapy Elamipretide
    January 27, 2025

    PDUFA Date Extended for Potential Barth Syndrome Therapy Elamipretide

    Jessica Lynn
  • Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights
    January 16, 2025

    Fighting for the Next Generation: A Young Advocate’s Vision for Disability Rights

    Jessica Lynn
  • Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2
    January 2, 2025

    Rare Twice Over: A Mother and Son’s Journey in HADDS and AUTS2

    Jessica Lynn
  • In the UK, A Blood Test Can Uncover Your Alzheimer’s Disease Risk
    December 2, 2024

    In the UK, A Blood Test Can Uncover Your Alzheimer’s Disease Risk

    Jessica Lynn
  • When Doctors Stop Listening: The Challenges of Living with Multiple Rare Conditions
    December 2, 2024

    When Doctors Stop Listening: The Challenges of Living with Multiple Rare Conditions

    Jessica Lynn
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Rareatives is a patient-led publication where the unique stories of the rare disease community become headline news. We’re flipping the script on rare diseases. Not just awareness — action. Your story could spark the next big change. Ready to rewrite the narrative?

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